Jamaica CAUSE

Jamaica CAUSE

Friday, August 4, 2017

BABY CHARLIE GARD (4 AUGUST 2016 TO 28 JULY 2017)



            We, Pro Lifers, will remember the late Baby Charlie Gard every year on his birthday on 4 August every year.

  





Charlie Gard

 
Cropped news photograph of Charlie Gard on a medical bed.

Born
Charles Matthew William Gard
4 August 2016
London, UK
Died
28 July 2017 (aged 11 months 24 days)
Cause of death
Nationality
British
Parent(s)
  • Christopher Gard
  • Constance Yates
The Charlie Gard case was a best interests case in 2017 involving Charles Matthew William Gard (4 August 2016 – 28 July 2017), an infant boy from London, born with mitochondrial DNA depletion syndrome (MDDS), a rare genetic disorder that causes progressive brain damage and muscle failure. MDDS has no treatment and usually causes death in infancy. The case became controversial because the medical team and parents disagreed about whether experimental treatment was in the best interests of the child.
In October 2016, Charlie was transferred to London's Great Ormond Street Hospital (GOSH), a National Health Service (NHS) children's hospital, because he was failing to thrive and his breathing was shallow. He was placed on mechanical ventilation and MDDS was diagnosed. A neurologist in New York, Michio Hirano, who was working on an experimental treatment based on nucleoside supplementation with human MDDS patients was contacted. He and GOSH agreed to proceed with the treatment, to be funded by the NHS, and Hirano was invited to come to the hospital to examine Charlie. In January, after Charlie had seizures that caused brain damage, GOSH formed the view that further treatment was futile and might prolong suffering. They began discussions with the parents about ending life support and providing palliative care.
Charlie's parents still wanted to try the experimental treatment and raised funds for a transfer to a hospital in New York. In February 2017, GOSH asked the High Court to override the parents' decision, questioning the potential of nucleoside therapy to treat Charlie's condition. The British courts supported GOSH's position. In July 2017, after receiving a letter signed by several international practitioners defending the potential of the treatment and claiming to provide new evidence, GOSH applied to the High Court for a new hearing.:9 Dr Hirano visited Charlie at GOSH during the second hearing of the case at the request of the judge. After examining scans of Charlie's muscles, Hirano determined it was too late for the treatment to help Charlie and the parents agreed to the withdrawal of life support. GOSH refuted Hirano's statement that it was too late for the treatment. GOSH maintained its position throughout that Charlie's condition had deteriorated by January to the extent that the proposed experimental treatment was futile.:7 The second hearing at the High Court, which had been arranged to hear and examine the new evidence then became concerned with the arrangements for the withdrawal of life support. On 27 July, by consent, Charlie was transferred to a hospice, mechanical ventilation was withdrawn, and he died the next day at the age of 11 months and 24 days.
The case attracted widespread attention in Britain and around the world, with expressions of concern and assistance offered by figures including President Donald Trump and Pope Francis. At the time of Charlie's death, The Washington Post wrote that the case "became the embodiment of a passionate debate over his right to live or die, his parents' right to choose for their child and whether his doctors had an obligation to intervene in his care."

OTHER LINKS:


 







Baby Charlie Gard (4 August 2016 to 28 July 2017):
10. NEW INTERVIEW: Charlie Gard’s Parents on His Final Moments: “He Opened His Eyes and Looked at Us and Then Closed Them”



11. Our last hours with our son: Charlie Gard's parents emotionally reveal how they finally brought their baby home after he died in a hospice and spent several days saying their last goodbye

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12. Baby’s life-support will be switched off today against parents’ wishes: judge rules



13. Vatican Criticized for “Cowardly” Statement After Court Says Hospital Can Kill Charlie Gard


14. BREAKING: Vatican hospital offers to take baby after courts order him off life support



15. Protesters Flood the Streets Demanding to “Save Charlie Gard”



16. Pro-lifers to protest, pray for baby Charlie Gard at British embassy



17. Please pray: Charlie Gard’s parents meet with hospital to fight for baby’s life



18. SIGN THE PETITION: Support Charlie Gard, forced off life support by judge



19. PETITION: Judge Francis : Save Charlie Gard!


20. Let Charlie go: Mother who agreed for doctors to turn off her baby’s life support at just two days old insists the Gards are WRONG to question medics and should 'let him die'

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21. BREAKING: Charlie Gard’s Parents Storm Out of Court Hearing After Judge Said They’d Want Charlie to Die


22. 12 hours of prayer for Charlie Gard happening now. Join in and pray for Charlie, his parents, and those in the court room!



23. We need every pro-lifer to stand up for Charlie Gard. Here’s how


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Baby Charlie Gard (4 August 2016 to 28 July 2017):
9. Charlie Gard’s Mother Recalls When the Doctor Said “It Would be Kinder” to Kill Him


10. Charlie Gard’s Mother Still Heartbroken: “He Deserved an Opportunity to Live”

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11. NEW INTERVIEW: Charlie Gard’s Parents on His Final Moments: “He Opened His Eyes and Looked at Us and Then Closed Them”



12. Our last hours with our son: Charlie Gard's parents emotionally reveal how they finally brought their baby home after he died in a hospice and spent several days saying their last goodbye


13. Baby’s life-support will be switched off today against parents’ wishes: judge rules



14. Protesters Flood the Streets Demanding to “Save Charlie Gard”



15. Pro-lifers to protest, pray for baby Charlie Gard at British embassy



16. Please pray: Charlie Gard’s parents meet with hospital to fight for baby’s life



17. Let Charlie go: Mother who agreed for doctors to turn off her baby’s life support at just two days old insists the Gards are WRONG to question medics and should 'let him die'


18. 12 hours of prayer for Charlie Gard happening now. Join in and pray for Charlie, his parents, and those in the court room!




19. We need every pro-lifer to stand up for Charlie Gard. Here’s how



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