We, Pro Lifers, will remember the
late Baby Charlie Gard every year on his birthday on 4 August every year.
Charlie
Gard
|
|
Born
|
Charles
Matthew William Gard
4 August 2016 London, UK |
Died
|
28 July
2017 (aged 11 months 24 days)
|
Cause of death
|
|
Nationality
|
British
|
Parent(s)
|
|
The Charlie Gard case was a best
interests case in 2017 involving Charles Matthew William Gard (4 August
2016 – 28 July 2017), an infant boy from London, born with mitochondrial DNA depletion
syndrome (MDDS), a rare genetic
disorder that causes progressive brain
damage and muscle failure. MDDS has no treatment and usually causes death
in infancy. The case became controversial because the medical team and parents
disagreed about whether experimental treatment was in the best interests of the
child.
In October 2016, Charlie was transferred to
London's Great Ormond Street Hospital (GOSH), a
National Health Service (NHS) children's
hospital, because he was failing to thrive and his breathing was shallow. He
was placed on mechanical ventilation and MDDS was
diagnosed. A neurologist in New York, Michio Hirano, who was working on an
experimental treatment based on nucleoside supplementation with human MDDS
patients was contacted. He and GOSH agreed to proceed with the treatment, to be
funded by the NHS, and Hirano was invited to come to the hospital to examine
Charlie. In January, after Charlie had seizures that caused brain damage, GOSH
formed the view that further treatment was futile and might prolong suffering. They began
discussions with the parents about ending life
support and providing palliative
care.
Charlie's parents still wanted to try the
experimental treatment and raised funds for a transfer to a hospital in New
York. In February 2017, GOSH asked the High Court to override the parents' decision,
questioning the potential of nucleoside therapy to treat Charlie's condition.
The British courts supported GOSH's position. In July 2017, after receiving a
letter signed by several international practitioners defending the potential of
the treatment and claiming to provide new evidence, GOSH applied to the High
Court for a new hearing.:9 Dr Hirano visited Charlie at GOSH during
the second hearing of the case at the request of the judge. After examining
scans of Charlie's muscles, Hirano determined it was too late for the treatment
to help Charlie and the parents agreed to the withdrawal of life support. GOSH
refuted Hirano's statement that it was too late for the treatment. GOSH
maintained its position throughout that Charlie's condition had deteriorated by
January to the extent that the proposed experimental treatment was futile.:7
The second hearing at the High Court, which had been arranged to hear and
examine the new evidence then became concerned with the arrangements for the
withdrawal of life support. On 27 July, by consent, Charlie was transferred to
a hospice,
mechanical ventilation was withdrawn, and he died the next day at the age of 11
months and 24 days.
The case attracted widespread attention in Britain
and around the world, with expressions of concern and assistance offered by
figures including President Donald Trump and Pope
Francis. At the time of Charlie's death, The Washington Post wrote that the case
"became the embodiment of a passionate debate over his right to live or
die, his parents' right to choose for their child and whether his doctors had
an obligation to intervene in his care."
INTERNET SOURCE: https://en.wikipedia.org/wiki/Charlie_Gard_case
OTHER
LINKS:
INTERNET SOURCE: https://www.liveaction.org/news/charlie-grad-parents-fight-final-moments-peace-privacy/
Facebook Link: https://www.facebook.com/liveaction/posts/10155533901788728
INTERNET SOURCE: https://www.lifesitenews.com/news/charlie-gard-ventilator-removed/
INTERNET SOURCE: http://www.dailymail.co.uk/news/article-4738946/Little-Charlie-Gard-s-parents-announce-death.html
Facebook Link: https://www.facebook.com/DailyMail/posts/2599010203492045
INTERNET SOURCE: http://www.lifenews.com/2017/07/28/charlie-gard-dies-after-life-support-is-switched-off-mother-says-our-beautiful-boy-is-gone/
Facebook Link: https://www.facebook.com/LifeNews/posts/10155365339833598
Facebook Link: https://www.facebook.com/permalink.php?story_fbid=1421476137899695&id=1142782539102391
Baby Charlie Gard (4 August 2016 to 28 July 2017):
10.
NEW INTERVIEW: Charlie Gard’s Parents on His Final Moments: “He Opened His Eyes
and Looked at Us and Then Closed Them”
11.
Our last hours with our son: Charlie Gard's parents emotionally reveal how they
finally brought their baby home after he died in a hospice and spent several
days saying their last goodbye
---------------------------------------------------------------------------------------------------------------------
12.
Baby’s life-support will be switched off today against parents’ wishes: judge
rules
13.
Vatican Criticized for “Cowardly” Statement After Court Says Hospital Can Kill
Charlie Gard
14.
BREAKING: Vatican hospital offers to take baby after courts order him off life
support
15.
Protesters Flood the Streets Demanding to “Save Charlie Gard”
16.
Pro-lifers to protest, pray for baby Charlie Gard at British embassy
17.
Please pray: Charlie Gard’s parents meet with hospital to fight for baby’s life
18.
SIGN THE PETITION: Support Charlie Gard, forced off life support by judge
19.
PETITION: Judge Francis : Save Charlie Gard!
20.
Let Charlie go: Mother who agreed for doctors to turn off her baby’s life support
at just two days old insists the Gards are WRONG to question medics and should
'let him die'
---------------------------------------------------------------------------------------------------------------------------
21.
BREAKING: Charlie Gard’s Parents Storm Out of Court Hearing After Judge Said
They’d Want Charlie to Die
22.
12 hours of prayer for Charlie Gard happening now. Join in and pray for
Charlie, his parents, and those in the court room!
23.
We need every pro-lifer to stand up for Charlie Gard. Here’s how
-----------------------------------------------------------------------------------------------------------------------
Baby Charlie Gard (4 August 2016 to 28 July 2017):
9.
Charlie Gard’s Mother Recalls When the Doctor Said “It Would be Kinder” to Kill
Him
10.
Charlie Gard’s Mother Still Heartbroken: “He Deserved an Opportunity to Live”
---------------------------------------------------------------------------------------------------------------------
11.
NEW INTERVIEW: Charlie Gard’s Parents on His Final Moments: “He Opened His Eyes
and Looked at Us and Then Closed Them”
12.
Our last hours with our son: Charlie Gard's parents emotionally reveal how they
finally brought their baby home after he died in a hospice and spent several
days saying their last goodbye
13.
Baby’s life-support will be switched off today against parents’ wishes: judge
rules
14.
Protesters Flood the Streets Demanding to “Save Charlie Gard”
15.
Pro-lifers to protest, pray for baby Charlie Gard at British embassy
16.
Please pray: Charlie Gard’s parents meet with hospital to fight for baby’s life
17.
Let Charlie go: Mother who agreed for doctors to turn off her baby’s life
support at just two days old insists the Gards are WRONG to question medics and
should 'let him die'
18.
12 hours of prayer for Charlie Gard happening now. Join in and pray for
Charlie, his parents, and those in the court room!
19.
We need every pro-lifer to stand up for Charlie Gard. Here’s how
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